A CALL FOR HELP: FUNDRAISER FOR EMILY

All my BLOGGER friends I need your help and brain power in helping raise some money for the sweet Emily that I have been talking about on my Blog for MONTHS!!

I need some connections to help with her benefit concert that we will be throwing on Monday the 10th or Tuesday the 11th of Novemeber at Payson or Spanish Fork High Schools.

We have a performing group coming in from Mesa Arizona that is called LIGHT (like the BYU Young Embassadors that has Emily's cousin the group) and we need one or two well known people in Utah to put their names on the event and come and perform there as well.

Do you know any of these people that would like to join in such a GREAT cause for a little 6 yr old girl and her family?

Emily's Medicine's alone are so expensive to keep her alive that we are trying everything that we can to help ease that expensive for her family.

If you know a UTAH performer, could you please pass Emily's story along. You can read about her at keepmovingahead.blogspot.com (click on the label Emily)

I need to know ASAP so that I can get a move on with the advertising. If you or your family would be willing to volunteer to spread the word, bake things for a bake sale, or help at the event, PLEASE let me know!!

I have seen mighty miracles happen when people unite in faith and charity to bring about a good cause. I expect that with all of your help, this could turn out to be just that a miracle.

My email is megan.gazaway@jetblue.com

Thankful Thursday: Emily is HOME!!

THIS PICTURE SAYS IT ALL!!!

Emily we are so happy that you are at home with you family! What a great place to be! You have been SO brave and all the prayers were worth it!

Praying for you that you can stay with your parents, friends and favorite dog Leo!

Look at all the friends that showed up to welcome her home!

EMILY YOU ARE LOVED!! I love you girl!

UPDATE: Sweet Em's new "DO"

I talked to our brave, positive and faithful Jill today and found out that last night Emily lost the majority of her hair. They had talked to her about it and so instead of freaking out about it... she made it a beauty shop night and let the nurse take off the little remaining so it wouldn't be so itchy!

Doesn't she pull off a hat well! I think she is simply adorable though I must admit that I sobbed while reading the entry and wished I was as brave as Jill was. You can see a video of her at http://www.keepmovingahead.blogspot.com/. Keep praying for her so all the "ITCHYS" that she gets from the medicines will go away!

WAY TO BE JILL AND EM!

"In all of living, have much joy and laughter, Life is to be enjoyed not just endured."

-President Gordon B Hinkley

Friday: Emily and Jacqueline's Bone Marrow Transplant Day

The Heaps Family Heros.... CONTINUED!

Mom, Jill attending to sister donor Jacqueline


Daddy, Matt attending to Emily our dear transplant recipient!

Today was the big day where Jacqueline gave the much needed bone marrow to her sister Emily for the second time. Today was Emily's Bone Marrow birthday.

I wasn't able to be there at the hospital today but throught the updates it sounds as though everything went smoothly and the troopers made it through.

Jacqueline had 40-50 holes drilled on either side of her back to get her bone marrow out and then they put it in a machine and then into an IV looking bag and it goes into Emily on a drip. Sounds like all your prayers today for a smooth go of things were answered!

On their blog they said, "As we were in Emily's hospital room tending to two daughters that were at the time feeling very very sick, someone asked Thomas, "So Thomas, how are you doing?". He replied back with a smile on his face and a shrug of the shoulders, "Well, a lot better than my sisters...".

We love you Heaps! Thanks for being so brave and giving Emily a new lease on life. All my readers prayers are with you still and always!

Tribute Tuesday: The Heaps Family Heroines

Jill, Jacqueline and Emily Heaps

“Brethren, shall we not go on in so great a cause? Go forward and not backward. Courage, brethren; and on, on to the victory!” D&C 128:22

Today I want to pay tribute to three girls who mean the world to me and who I have had such sweet experiences with over the past 6 years. The girls are daughters of God who show that they know who they are and where they have come from by the faith and courage they put forward everyday.

Jill, Jacqueline and Emily Heaps are modern day heroines.

In January 2002, Jill was blessed with a second angel daughter named Emily. After Emily had been sick upon arriving home she was returned to the hospital and after several tests and mis-diagnosis it was concluded that Emily had SCID, “Severe Combined Immunodeficiency, is a primary immune deficiency. The defining characteristic is usually a severe defect in both the T- & B-lymphocyte systems.
Emily was what you refer to as a “bubble baby”. She was checked into Primary Children’s where she stayed in a very sanitary restricted area. Jill was basically at the hospital 24/7 unless the family, friends or ward members relieved her for small visits home. I believe they were there about 4 months.
During this time I was able to take time off school and work to take care of the other part of the heaps family, Jacqueline and Thomas. From the beginning I felt so blessed to be able to be in a time of my life where I was able to be of service to Jill so that she wouldn’t have to worry as much while she was away. I literally felt angels guiding me everyday to comfort those children in the ways they needed comfort. It was a blessed time of my life.
During this time is when another heroine was born… after a sad day of blood tests on our little Jacqueline and Thomas, it was shown that Jacqueline, then 6 yrs old, was a perfect match for a bone marrow transplant and she was so brave and wanted to do it to help her sister.

On the day of the transplant they had to drill lots of holes (at least to me it seemed like that) on the bottom part of Jacqueline’s back and then they put all her bone marrow in a machine which shook it all up and it came out looking like blood and was given to baby Emily by IV. We all sat there and watched while the transplant took place. It didn’t seem to phase Emily physically at all but poor Jacqueline was so sick and throwing up and sore. She went up 100 notches in my book that day as I watched that brave 6 yr old suffer so her Sister could have a normal life.

During Emily’s sickness the ward and community rallied around this family and gave all of us more love and strength then we could have ever imagined. We threw a successful benefit yard sale, a benefit concert and the movie “Charly” donated the benefits from the premiere to the cause. Although none of that could even come close to touching the medical bills that come from an ordeal such as this, the love and support and generosity gave such peace and stability to help see the family through this difficult time.
For 6 years Emily has been able to be with us in public. To romp around like any 6 year old would and to bring love, smiles and hugs to everyone she comes in contact with. How we all adore our little princess Emily. Anyone that is ever around her would never know the trials and sickness that are going on inside her little body. She lost most of her hearing from all the medications she was on yet talking to her you would never know. In fact, if you would see her today you would NEVER guess that tomorrow is the day that she will have to undergo chemotherapy for the first time. Yes, Emily’s bone marrow is rejecting and she will need to have chemo and then the two heroines will reunite their bone marrow once more…. This time we are positive it will stick!

As for the Mother heroine she is a rock. She has the faith to move mountains for her daughter. She is there to comfort and bless sweet Emily’s life, She is willing to take a step into the darkness, the unknown, if it will improve Emily’s overall health and lifespan.

I was told by Grandma Whiting that when Emily went into surgery to have the port put into her for chemo yesterday, that she got a little scared and Jill said to her, “Emily don’t be afraid, Angels will be watching over you!” to that Emily replied, “ Will the doctors step on them?” Isn’t she the cutest thing ever?!

To my Jill, my Emily and my Jacqueline heroines, THANK YOU for showing me that you believe in the Savior Jesus Christ, that you love each other more than any pain would inflict, and that you understand the principles of faith and hope. This new detour will continue only for a time but when it is over just like the last time we will all be able to look back and see the miracles of life and love and charity that were reaped upon you all.

Just like your blog says, “keep moving ahead” look forward not backward, and come back to all of our arms soon! We will all be praying for you, supporting you, and visiting you!

YOU ARE THE BEST! YOU ARE STRONG! YOU CAN DO IT WITH A SMILE ON!